In a world-first, the 16th World Congress on Endometriosis, has a whole day of its program dedicated consultation with those who have lived experience of endometriosis and pelvic pain, ensuring that priority setting for research and action in the future will be informed by endometriosis patients. Australia’s peak body for endometriosis and pelvic pain, the Australian Coalition for Endometriosis (ACE), has championed this consumer engagement and will lead roundtable discussions ensure to community-driven priorities for research and action.
ACE Chair, Jessica Taylor, stated: “The Australian Coalition for Endometriosis championed this Community Day to give endometriosis patients the opportunity to inform the development of the policies that will impact their future care and treatment options.”
Hosted by the World Endometriosis Society, the World Congress on Endometriosis aims to advance the understanding of patient treatment, patient care and the causes and consequences of the endometriosis on the lives of countless women through collaboration across clinical, scientific and allied health professionals.
The Community Day will feature patient stories alongside, exceptional speakers, international experts, and community organisations from around the world. It is dedicated to empowering individuals, amplifying lived experiences, and shaping the future of endometriosis research, treatment, and policy.
ACE Chair, Jessica Taylor said, “This is more than just a day of talks and science — it’s a platform for the 1 in 7 who live with endometriosis and pelvic pain. It’s a moment to be seen and heard. Australia has been a global leader in the development of endometriosis policy and it’s time to showcase our patients, consumers and advocates to the world. They will be shaping what happens next in research, policy, and care. “
The 16th World Congress on Endometriosis organisers, Professor were pleased to announce the Community Day as an integral element of the Congress. “A dedicated program has been designed for the broader Endometriosis community, proving you the opportunity to hear the latest scientific updates, connect with others who understand the journey, and rethink the future of endometriosis and pelvic pain care in Australia and beyond.” (https://www.wce2025.com.au/communityday)
As part of the Community Day program, the Australian Coalition for Endometriosis will conduct the New South Wales Endometriosis National Priority Setting Roundtable Consultation. ACE is currently conducting a national roundtable consultation to identify key priorities for endometriosis and pelvic pain in every state and territory in Australia. Insights from these consultations will inform its 2025 report to the Australian Government, due in June. ACE will also collate the outcomes into a national public report of key themes and actions.
EVENT DETAILS
All Australians impacted by endometriosis and pelvic pain are invited to participate in this historic event:
Community Day at the 16th World Congress on Endometriosis
Saturday 24 May, 2025
International Convention Centre, Sydney
Tickets $125 (inc gst) Register here: https://www.wce2025.com.au/communityday
WRITTEN SUBMISSIONS
Those who are unable to attend in person are invited to submit a written submission via this link:
https://docs.google.com/forms/d/e/1FAIpQLSdrqwYMiFTpybo7AaYDKcNjFeI5vQ9Zf8DyWpVHYiwMa47tLA/viewform
Submissions received by COB 30 May 2025 will be included in the report to the Australian Government, June, 2025.
ACE invites all Australians who are impacted by endometriosis to participate in the Roundtable consultations in their local state or territory. For event details or to register your interest please email: info@acendo.com.au
